Accession Number : ADA337350
Title : Bilingual Educational Tool for Breast Cancer Genetics
Descriptive Note : Annual 15 Sep 96-14 Sep 97
Corporate Author : MICHIGAN UNIV ANN ARBOR
Personal Author(s) : Merajver, Sofia D.
PDF Url : ADA337350
Report Date : OCT 1997
Pagination or Media Count : 81
Abstract : The BRCA1 gene is responsible for an autosomal dominant syndrome of inherited susceptibility to breast and ovarian cancer. To date, over 100 disease-predisposing mutations have been identified in families. We are beginning to understand the influence of genetic factors on the incidence of breast cancer in largely Caucasian populations, very little is known about breast cancer risk attributable to inherited factors in African American and even less in Hispanic populations. We hypothesize that one major barrier to access to risk assessment in these populations is the lack of appropriate educational tools. In all populations, a major challenge of predictive testing will be patient education of scientific facts needed to make an informed decision. We propose the development of a bilingual (Spanish- English) reusable, fifth-grade level, self-paced instrument for use in genetics education prior to discussions of informed consent or risk assessment.
Descriptors : *EDUCATION, *GENETICS, *BREAST CANCER, RISK, MUTATIONS, PATIENTS, WOMEN, SPANISH LANGUAGE, MAMMARY GLANDS, CAUCASIANS, HISPANICS, AFRICAN AMERICANS.
Subject Categories : Genetic Engineering and Molecular Biology
Medicine and Medical Research
Distribution Statement : APPROVED FOR PUBLIC RELEASE